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SUPPORT GROUP MEETINGS: * PLEASE CHECK
OFTEN FOR NEWS
Empire
State Lyme Disease Association, Inc (ESLDA)
is a nonprofit organization bringing together patients of Lyme
and other tick borne illnesses.
Click here for "Printable
Versions" for directions or to print out flyers you can post!
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RIDGE LYME SUPPORT GROUP
EMPIRE STATE LYME DISEASE ASSOCIATION INC
DATE:
We meet on each second Thursday of the month
TIME: 1 - 2:30 pm
WHERE: Ridge Civic Center,
Panamoka
Trail, Lake Panamoka, Ridge,
NY
Info 631- 929-6142 or Cathy at chahn720@verizon.net
Going west on Rt.
25, you make a right onto Panamoka
Trail; go 3 blocks and the
Civic Center is on the right
-
you will see the
firehouse across the street.
Heading
east on Rt. 25, go past the William Floyd Parkway intersection
and continue east until you see "Panamoka Trail road sign on
the left. Go left, head three blocks and the Civic Center is
on the right.
Open
Forum and Ongoing Discussion: HAVE YOU BEEN MISDIAGNOSED?
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Lyme disease mimics other diseases; people are misdiagnosed with
Fibromyalgia, Chronic Fatigue, ALS, MS, Lupus, Parkinson’s,
Alzheimer’s, and later, will find that the 'culprit' is Lyme
disease. We
will also discuss the AUTISM-LYME CONNECTION
Participants
are encouraged to raise questions, exchange ideas and experiences, make connections, and locate resources, drawing from the extensive experience of
support group members.
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All
with questions about Lyme & tick-borne
disease are welcome to attend!
Free and Open to the
public.
Info 631- 929-6142 or Cathy at chahn720@verizon.net
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Oneonta
LYME
DISEASE SUPPORT GROUP MEETINGS
Meetings
will be announced and are conducted
in the
Education Wing, Classroom C
of
the FoxCare Center 1 Foxcare Road (State Route 7) in Oneonta.
Meetings are held in education wing, classroom 'C'
at FOX CARE CENTER
1 Foxcare Road, Oneonta, New York
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TOPIC: Testing for Lyme disease will be discussed from
procedure to result, dismissing false information and explaining the value to the physician in diagnosing Lyme disease.
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Meetings
are free and open the public.
More info - call Bob Tuthill 607-278-4049 or email btut42@yahoo.com
We offer support,
understanding and education of the trials of Lyme disease and other
tick-borne illnesses.
Empire State Lyme Disease Association |
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Capital Region Branch
Guilderland,
New York
Empire
State Lyme Disease Association, Inc.
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To
Be Announced
An open forum Lyme Support Group Meeting
At
the Guilderland Public Library
2228
Western Avenue, Guilderland, NY
Lyme
disease is a bacterial infection principally transmitted
through the bite of ticks. Ticks also can transmit a number
of other serious diseases, such as Babesia, Bartonella,
Anaplasma, and Ehrlichia. These infections can attack any of
the body's systems, and can manifest in many different forms
in different victims, including severely effecting the
musculoskeletal system, creating severe pains in the joints,
disrupting sleep, disturbing the digestive system, and many
more. Frequently misdiagnosed and widely misunderstood, Lyme
disease, in particular, has reached epidemic levels in the
eastern part of New York State, including sections of the
Capital Region.
The Open Forum format encourages participants to raise
questions, exchange ideas and experiences,
make connections, and locate
resources, drawing from the extensive experience of the
other support group members.
Anyone
with questions about Lyme disease is welcome to
attend.
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Meetings are free and open to the
public.
If you would like to be added to the mailing list to be notified of
future events, or for further information, contact felicite44@aol.com |
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Onondaga
Hill, NY
Central New York Chapter
of the
Empire
State Lyme Disease Association, Inc.
Meetings
are held
in the Community room of the
Onondaga Free Library in Onondaga Hill.
We offer support and understanding of the trials of Lyme Disease.
For more information please call
Kristin at
315-200-6541 or email LymeCNY@gmail.com
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Manorville, NY
Empire-
State Lyme Disease Association, Inc.
Special events will
be announced
Call 631-878-6657
or
please email
EmpireStateLyme@aol.com
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CNYLS
Chittenango Lyme Support
Schedule
for CNYLS, the Lyme group from Chittenango
CNYLS Monthly meeting at Sullivan Free Library, Chittenango.
May 17th Thursday 7 PM at location TBA:
CNYLS presents LLMD Stephen
Bock
and
IGeneX Inc. representative Robert
Giguere.
Contact
CNYLS at CNYlyme@gmail.com, or phone 315-687-6540.
CNYLS, founded 2011, serves as a resource, offering information and guidance
for issues of Lyme and other tick-borne diseases. CNYLS provides a place for its
members to share feelings and concerns with others suffering from effects of the
disease. CNYLS also offers a faith-based perspective in coping with the
complexities of living with Lyme. Contact CNYLS at CNYlyme@gmail.com, or phone
315-687-6540.
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Adirondack
Lyme Disease Foundation
Empire
State Lyme Disease Association, Inc.
Support
group meetings are scheduled to be at the Saratoga Springs Public
Library, 49 Henry Street,
Saratoga
Springs, NY in the Susman room, located on the lower level, from
7-8:30 PM.
For
more information, please
email lmcallister@nycap.rr.com
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East
Islip, NY:
Empire
State Lyme Disease Association, Inc.
Support
Meetings: Fourth Saturday of Every Month
At
the East Islip Public Library
381
East Main Street East Islip, NY 11730
For more information, please
call
631-878-6657 or 631-650-5483 or
email
EmpireStateLyme@aol.com
or Blyjan@Yahoo.com
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Chronic Disease Support Group
St Charles Hospital in Port
Jefferson, NY
Empire
State Lyme Disease Association, Inc.
For more information, please
call
631-905-2398
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Great
Neck,
NY:
North Shore
Lyme
Disease Support Group
Empire
State Lyme Disease Association, Inc.
Special events will
be announced
All Saints
Episcopal Church
- Ground floor conference room
855 Middle Neck Rd
Great Neck, NY 11024
Call
631-878-6657 or Email
NorthShoreLyme@gmail.com
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VISION
FOR LYME ENCOURAGEMENT GROUP
Support Group Meeting
2nd
Wed of every month
6:30 at Bethlehem Community Church
201 Elm Avenue, Delmar
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WE'LL TRY TO START PROMPTLY at 6:30 & END PROMPTLY at 7:45*
PURPOSE:
This is a non-denominational faith-based group. We are here to
listen and support each other’s spirituality as we all strive to
heal. This group will begin and end in prayer. We will -
* Share & listen to each others' stories to help each other to cope
& get through these difficult times.
* Feel encouraged that we have a place to share to help with the
isolation of this disease.
* Pray for each other, giving us hope that there is someone that
cares and wants us healed, whether physically, emotionally or
spiritually.
* There is power in numbers! We need to let people around us know
that this is serious and REAL!
* An opportunity to hear of claims of effective and/or ineffective
treatments as reported by individual patients and/or doctors,
medical, other professionals.
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A Hope 4
Lyme – Support Meetings
and Information
Meetings usually held at
Big Flats Community Center (Room C)
476 Maple Street
Big Flats, NY 14814
This is free and open to anyone suffering from Lyme or other tick-borne
diseases, caregivers, children, friends & family who have questions
and/or are looking for answers.
______________________________________________________
Scholarships
Two scholarships for $500 (one traditional and one non-traditional) will
be available from us through The Community Foundation of Elmira and the
Finger Lakes, Inc. for 2012. The deadline for the application will be
February 16, 2012 with the recipients announced after The Community
Foundation's April 2012 board meeting.
Applications and details: http://www.communityfund.org/scholarships
Selection Criteria:The scholarships are available for anyone who meets one
of the following criteria:
Has been diagnosed or treated for Lyme disease
Has been affected by Lyme thru the illness of an immediate family
member
Is pursuing a career in the medical field
Is a resident of Broome, Chemung, Schuyler, Steuben, Tioga (PA & NY),
Tompkins, Bradford, Lycoming or Potter County.
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5th Annual Lyme Walk – for those who can’t
Saturday, May 12, 2012 (Please note new day!)
Chapel Park
83 Personius Rd
Pine City, NY
Chapel Park is a dog friendly park and this year we are encouraging
people to come with their sociable dogs. We have made changes this year
to make the day more exciting. Further details will be forwarded with
our Save the Date emails/cards.
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Financial Help - Gas Cards
A Hope 4 Lyme has gas cards to help off-set travel expenses, for
disbursement to individuals who are actively undergoing treatment for
tick borne diseases. The cards are available for residents of the
following Twin Tier counties –
New York - Broome, Chemung, Schuyler, Steuben, Tioga, and Tompkins
Pennsylvania - Bradford, Lycoming, Potter, and Tioga.
Individuals may self-request by mailing a completed form or if you know
someone who may need help but would feel uncomfortable self-requesting,
please send details via email. ahope4lyme@yahoo.com
Forms may be downloaded from our website.
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Business Meetings
Our regular business meetings are held the 2nd Friday of each month
(excluding December) from 6:30 pm to 9:00 pm at the Big Flats Community
Center, 476 Maple Street, Big Flats, NY 14814
Anyone is welcome to attend these to see what we do, offer input and
volunteer.
Donations and volunteers are always welcome to help us achieve our
mission! Donations may be made to the address below. If you are
interested in volunteering with any event (i.e. help get sponsors, set
up, distribute posters, etc.) please send an email to ahope4lyme@yahoo.com
or call Linda at 570-537-6616. For details on how you may earn money for
us by shopping on-line at your favorite store, please visit our website
and click on donating.
Note: We have recently combined our two emails (Lyme Walk & A Hope 4
Lyme); therefore, if you would like to be removed from our contact list,
please respond to this email asking to be removed.
Linda Wales
Director/Treasurer
A Hope 4 Lyme, Inc.
PO Box 1003
Elmira, NY 14902-1003
www.ahope4lyme.org
Our Mission is to help relieve those suffering from and distressed by
the effects of Lyme and other tick-borne diseases and promote community
awareness.
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The
Empire State Lyme Disease Association, Inc. is a nonprofit charitable
organization incorporated in NYS and dedicated to education, prevention,
awareness and patient support for tick-borne
illnesses including Lyme disease. Our
goal is education about prevention of tick
bites and the importance of early diagnosis of the diseases transmitted by ticks. We offer
patient support and work for awareness of the need for health care
for victims of both early and later diagnosed tick-borne diseases.
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Information on this site
is offered to help further awareness of Lyme
and associated diseases. We hope that the information will help you
to become more familiar with the subject of tick borne illnesses, but the information
on this web site should not be used as a substitute for medical advice,
diagnosis, or treatment. The information on this web site does
not represent endorsement or an official position of Empire
State Lyme Disease Association, Inc. or any of its directors, officers,
advisors or members. Please consult a physician for all
medical advice, including advice on testing, treatment and care of a
patient who has or may have Lyme or any associated tick borne
diseases. |
* You
can
help - please click here to fill out a Lyme Awareness NYS DOH letter
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EMPIRE STATE LYME DISEASE
ASSOCIATION
