EMPIRE STATE LYME DISEASE ASSOCIATION

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OPMC Reform

Signed by Gov. Paterson 2008

and

NYS Doctors are Offered Some Protection

 

Empire

(free) Empire State Lyme Informational Brochures -or ask for a customized version for your group

 

Tick- Info (Download  Tick Management Info free)

 

Lyme and Tick-

Borne Disease Info

· The Beginning

· Rashes

· Early Detection 

· Testing

· Symptoms

· Additional Symptoms

· Co-infections

· Late stage Infection

· Antibiotics

· Treatment

· Herxheimer Reaction

· Mechanism of Action

· Survival Tactics

· The Bad News 

· Conclusion

· Good News

· Prevention

· Alternative Treatments

· Lyme Disease Politics

· Disclaimer

 

**PREVENTION**

 

Lyme tests are not accurate-2005 John Hopkins study

 

Articles on the Persistence and Virulence of Lyme

by Miklossy, Luft, Barthold,  others

 

*Support Group Meetings*

 

Empire State Lyme en Español

 

Michele Moynihan's Presentation "Lyme Disease: Be Lyme Wise* is a Great Educational Presentation for School Children 

 

LYME BOOKS

on Tick-Borne Diseases plus

FREE LYME BOOK DOWNLOADS

and The Third Great Plague

 

Children

Autism and Lyme Disease

 

LYME & Pregnancy by John Drulle, MD

 

Misdiagnosis

Alzheimer's and Lyme Disease

ALS and Lyme

 

LYME BORRELIOSIS and MULTIPLE SCLEROSIS

 

Worm Parasites, FILARIASIS Nematodes in ticks?

Nematode Spirochete Farmers

Nematode-Bacteria- Symbiosis

10 Questions For Scientists

 

Heart Disease & Lyme Disease & Lyme Carditis
 

Antibiotic

Resistance

 

ILADS TIPS TO AVOID CHRONIC LYME DISEASE

 

*Donations*

*Contact Us*

*About Us

JOIN US ! (free)

*Archives*

*Links

Support

Group

Meetings

*Home*  

 

Freedom of Information Law Requests

2010 Federal Health Reform

Implementation Timeline

 

Special Thanks

 

In Memory

of Keith Romaine 

 

 
 

 

Lyme disease medical education
www.ilads.org  International Lyme and Associated Diseases Society.
www.jemsekspecialty.com
www.murakamicentreforlyme.org
www.thehumansideoflyme.net
www.mentalhealthandillness.com/lymeArticles.htm  psychiatric manifestations of Lyme
http://www.ncbi.nlm.nih.gov/pubmed/18726742  Memory and executive functions in adolescents with post treatment Lyme disease by McAuliffe P, Brassard MR, Fallon B
http://www.anapsid.org/lyme/bransfield-neuropsych.pdf  The Neuropsychiatric Assessment of Lyme Disease by Robert Bransfield, M.D.
http://www.angelfire.com/me2/StarShar/Herx1.html  Herxheimer Reaction http://www.personalconsult.com/articles/drjonesapproach.html  Interpreting Lyme Western Blot
www.gingersavely.com  Morgellon’s info
www.lymepa.org/Basics2007v1.2Rev.pdf free Lyme and Associated Tick-borne diseases, The Basics 5th Edition 2007 Douglas W Fearn, Lyme Disease Association of SE Pennsylvania.
www.lymenet.de/literatur/vtsherr_gut.htm  gastrointestinal manifestations of Lyme.
www.lymeinfo.net/multiplesclerosis.html  Lyme and multiple Sclerosis
www.publichealthalert.com  monthly newspaper on Lyme, related issues. Free on-line.
www.pubmed.gov  Free Access to abstracts of peer-reviewed science & medical journal articles
www.plosone.org  provides free access to the entire article, not just the abstract
www.lymedoctor.com  The Lyme Disease Solution, by Dr. Kenneth Singleton, a Lyme primer
www.openeyepictures.com  Under Our Skin DVD
Alternative Medicine Magazine's Definitive Guide to Sleep Disorders by Herbert Ross, Keri Brenner. Alternative programs including detoxification, dietary change, and more.
www.myremedi.com  Alternative medicines, Dr. Scott Taylor, DVM

Drug and Supplement Information
http://www.drugdigest.org/wps/portal/ddigest  Interactions/Contraindications
http://cassia.org/candida.htm  Candida/Fungal Overgrowth Symptom Checklist
http://www.drpodell.org/yeast  such infectiontreatments.shtml Candida Yeast Infection Treatments and Diets from Dr. Podell
http://www.nlm.nih.gov/medlineplus  Medline Plus, Medical encyclopedia, Drug dictionary
www.drugdigest.org  Drug Digest
www.rxlist.com  the Internet Drug Index, interactions, Western & Eastern medicine, side effects

Laboratories for tests
www.igenex.com  800-832-3200 IGENEX Labs for Western Blot test kits for Lyme disease
www.frylaboratories.com  480-292-8560 Fry Labs for Co-infection testing
https://www.clongen.com/ 301-916-0173 Clongen Labs
https://www.galaxydx.com/ 919-313-9672 Galaxy Diagnosis They claim to be the best for testing for Bartonella and good for coinfections
www.vipdx.com  775-351-1890 VIP Diagnostics Lab XMRV Virus Testing

Probiotics, low cost Pearls Immune, find at:
www.organicpharmacy.org 
www.riteaid.com
www.vitaminworld.com
888-834-8665 Medical Lifeline Button for Medical Emergency, Burglary or Fire. Call local hospital to see if they offer a Lifeline service. Medicare, Medicaid or Ins. may cover service.
IV Care Companies, the companies below are in every state
www.coramHC.com Coram Health Care
Nationwide: 1-800-423-1411
Option Care - Call general information to get phone numbers in your state.

Suicide Prevention
Suicide Prevention: 800-273-TALK 24-hour phone lines open
National Suicide Prevention Lifeline: 800-273-8255

Preventing Bug Bites
Avon Sprays, with Picaridin, an ingredient which was rated number 1 in a recent study
BEAT-IT Bug Spray, an all-natural spray 800-219-9765
TRIAZICIDE Lawn spray to prevent ticks in your yard 800-917-5438
Frontline, Best tick-prevention for pets
For clothing, Permethrin, check with your local Outdoor shop

Vitamins, herbs, supplements
DRCHCGO@aol.com  Monavie healing juice enhances immune system - Betty 641-990-7806
800-243-5242 Oreganax (natural antibiotic) North American Herb & Spice Co
866-994-9155 or 888-401-1105 Epicor, vitamin to enhance immune system, Chemical Free
www.carnivora.com  Carnivora, herb, Lymph Drainage
www.VitaCost.com  VitaCost
www.bragg.com  Bragg’s Products
www.pharmacopiaherbals.com  Pharmacopia Herbals Teasel Root from Dipsacus sylvestris root
www.jeansgreens.com  Jean's Greens New York State
www.woodlandessence.com  Woodland Essence Cold Brook, NY
www.walkerherbs.com  Walker Farms Wisconsin
www.earthmedicine.ca  Judy’s Organic Herbs (Canada only)
www.ladybarbara.net HERBALIST LadyB, recovered from eight bouts of Lyme in 15 years and well for 8 years now, offers education and empowerment.
www.herbspicetea.com  800-227-2830 Herbs For Health Nature’s Herb Company since 1915
Green Energy, Colon Cleansing, Diet Tea “Naturally”
www.swansonvitamins.com  800-824-4491 Swanson’s Catalogue, inexpensive, good for vitamin and herb needs. Ex: marshmallow is $3.99 per bottle at Swanson’s, vs. a typical cost of $10.99. Marshmallow combats nausea and aids in healing lesions in the stomach, and intestines. Milk Thistle is another herb that is only $1.99 per bottle. Milk Thistle protects the liver against large dosages of required antibiotics. Swanson’s est1969.

Rife Machine
Dan Tracy 518-548-8495, call after 7 pm CST, ~$500
Mary, RN (taught by Dan Tracy) 518-734-4166
www.rifemachinebuilder.com  Travis in Michigan (taught by Dan Tracy)
309-426-2339 Louellen Gooding got well using Rife and antibiotics, will answer questions

Lyme disease care
Natural Solutions Environmental, Inc., Healthy Living Environmental Appliance Retailers: Herbs, Articles on Natural Health, Air Cleaners / Purifiers, UV Air and Water Sterilizers, HEPA Air Cleaners, Purifiers & Filters, Water Filters /Shower Filters, Vent Duct UV Air Purifiers, Portable Air Filtration, Humidifiers / Dehumidifiers, Food Dehydrators/Juicers/Water Distillers
800-870-7149 Foot Smart
800-785-0880 Dr. Leonard’s Health Care catalogue
www.shopsleepsolutions.com  Sleep Solutions Catalogue 800-810-2340
800-810-2340 Home Trends
866-956-9355 Rejuvenate
www.firststreetonline.com  800-704-1210 First Street Catalogue, Chi machines for exercise, Foot massagers, Walkers, Bath aids, Stair chairlifts, compressed air Leg massagers, Memory Games
www.Hammacher.com  800- 543-3366 Headache wraps, Circulation leg wraps, Heated mattress pads, Mold & germ destroying air purifier, Electronic temple & eye massager
www.supportplus.com  800-229-2910 Support Plus, Did Biowarfare Cause Ld & Other Epidemics?
www.goldviolin.com  877-648-8400 Gold Violin

www.angelfoodministries.com  877-366-3646 ANGEL FOOD MINISTRIES Low cost food

Prescription Assistance Programs, Foundations That May Help Patients with Medicine Costs
877-296-4673 Prescription Hope, IV and oral antibiotics for low-income LD patients
http://www.pparx.org  888-477-2669 Partnership for Prescription Assistance
https://www.rxhope.com/about.aspx  877-267-0517 Rx Hope
www.needymeds.org  978-865-4115 Needy Meds meds for low-income patients
www.Ppark.org  888-477-2699

Funding aid:
http://www.clinicofangels.org  813-980-1236 Fx 813-989-3777 Clinic of Angels
www.modestneeds.org  212-463-7042
www.netwish.org  Net Wish, financial helping hand when needed most

866-316-7263 Patient Access Network Fn PO Box 221858 Charlotte, NC 28222-1858
www.healthwellfoundation.org  800-675-8416 Health Well Fn PO Bx 4133 Gaithersburg MD
www.edhayes.com/indigent.html  Patient Medication Assistance Program
866-512-3861 or 816-421-2300 Patient Advocate Foundation Suite 200-700 Thimble Shoas Blvd Newport News, VA 23606

Department of Human Services, DHS Waivers for Chronically Ill Patients Call 211 in your state
ILL & HANDICAP waiver, Brain Injury waiver, Elderly waiver, Physically Disabled waiver

Attorneys or Legal Firms who will help Lyme patients with various cases:
NOSSCR@ATT.net  800-431-2804 To locate your State’s Disability Attorney
walesperance@wwdb.org  505-266-8482 Bill L’Esperance will aid with going after insurance companies throughout US
800-662-4633 Binder and Binder, national, will help with Disability for Lyme patients

FOR TRAVEL
www.hotels.com  800-246-8357 LOW-COST HOTELS Ask for Hospital/Doctor visit rate

Free Air flights to Doctor’s Appointments

info@nationalpatienttravelcenter.org  800-296-1217 Fx 800-550-1767 The National Patient Travel Center provides information about all forms (see examples below) of charitable, long-distance medical transportation and provides referrals to all appropriate sources of help available in the national charitable medical transportation network.


www.miracleflightsforkids.org  800-FLY-1711 Miracle Flights for medical air travel on large airlines, free, if qualified, will take adults & children

www.angelflight.com  918-749-8992 Angel Flights email angel@angelflight.com 

888-675-1405 Charitable Patient Airline Tickets for patient travel that exceeds 1,000 miles or there are reasons a patient cannot fly on light aircraft.

866-270-9198 Air Compassion America Patient travel requires air ambulance and medical monitoring en route

757-333-0084 Angel Bus, a nonprofit dedicated to providing compassionate, non-emergency long-distance ground transportation to patients in need, utilizes motor coaches and volunteer drivers as well as commercial bus service.


888-662-6794 Air Compassion for Veterans provides medically related air transport services to troops, veterans and their immediate family members.

http://mercymedical.org  (MMA) Mercy Medical Airlift's mission is to ensure that no financially stressed patient is denied access to distant specialized medical evaluation, diagnosis or treatment for lack of means; further, they provide urgent transportation in situations of compelling human need and homeland security emergencies.

888-675-1405 Special Lift provides for nationwide "single-point of contact" administration of clinical trial travel requirements in support of special/rare disease organizations and clinical research centers. Persons or organizations concerned with travel assistance arrangements for multiple patients at different time and to different places should investigate this program.

800-296-3797 Stretcher Patient Transport Mercy Medical Airlift, a Federally-approved stretcher equipped Beech 36 aircraft, the Bonanza, for purposes of transporting patients who must be lying down en route. This is for personnel who do not require any medical attention en route, for example elderly bedridden patient being relocated to a new long-term care facility, child in a full body cast, etc MMA operates this aircraft under a Federal Air Carrier Certificate and utilizes a cadre of MMA trained pilots. The Bonanza is based out of Manassas, Virginia and serves the Mid-Atlantic States. The service is provided free of charge to eligible patients and families.

800-325-8908 Airlift Hope America Ambulatory outpatients traveling less than 1000 miles departing from North Carolina, Tennessee


800-296-3797 Angel Flight Mid-Atlantic Ambulatory outpatients traveling less than 1000 miles departs from District of Columbia, Delaware, Kentucky, Maryland, Michigan, Ohio, Pennsylvania, Virginia and West Virginia

www.volunteerpilot.org  757-318-9174 Air Charity Network (ACN) Support Mercy Medical Airlift has several support initiatives that it undertakes on behalf of and at no cost to the Air Charity Network including nationwide pilot recruitment, government liaison/program development and liaison with national disease and patient support organizations and other national charities involved in patient services. Their web site has referred thousands of potential volunteer pilots to ACN regions.

757-318-9174 Homeland Security Emergency Air Transportation System (HSEATS) is the United States civil aviation response to disasters. It is a jointly coordinated program that utilizes aircraft owned and flown by volunteer pilots, corporate business jets, air ambulance services through Air Compassion America and donated airline tickets through Mercy Medical Airlift
Charitable Aviation Association Management MMA contracts with other charitable medical air transportation orgs at the national, regional and state levels providing fund-raising, general administration and program services thus achieving maximum efficiency at minimal costs.



 

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Lyme WebRing Here.
The Empire State Lyme Disease Association, Inc. is a nonprofit charitable organization incorporated in NYS and dedicated to education, prevention,  awareness and patient support for tick-borne illnesses including Lyme disease.  Our goal is education about prevention of tick bites and the importance of early diagnosis of the diseases transmitted by ticks.  We offer patient support and work for awareness of the need for health care for victims of both early and later diagnosed tick-borne diseases.Information on this site is offered to help further awareness of Lyme and associated diseases.  We hope that the information will help you to become more familiar with the subject of tick borne illnesses, but the information on this web site should not be used as a substitute for medical advice, diagnosis, or treatment. The information on this web site does not represent endorsement or an official position of Empire State Lyme Disease Association, Inc. or any of its directors, officers, advisors or members. Please consult a physician for all medical advice, including advice on testing, treatment and care of a patient who has or may have Lyme or any associated tick borne diseases Back to Top