EMPIRE STATE LYME DISEASE ASSOCIATION

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OPMC Reform

Signed by Gov. Paterson 2008

and

NYS Doctors are Offered Some Protection

 

Empire State Lyme Informational Brochures (free)-also, you can ask for a customized version for your group

 

Tick- Info Plus (Download 97 page Tick Management free)

 

Lyme and Tick-

Borne Disease Info

 The Beginning

 Rashes

 Early Detection 

 Testing

 Symptoms

 Additional Symptoms

 Co-infections

Late stage Infection

 Antibiotics

 Treatment

 Herxheimer Reaction

Mechanism of Action

 Survival Tactics

 The Bad News 

 Conclusion

 Good News

 Prevention

 Alternative Treatments

 Lyme Disease Politics

 Disclaimer

 

**PREVENTION**

 

Lyme tests are not accurate-2005 John Hopkins study

 

Articles on the Persistence and Virulence of Lyme

by Miklossy, Luft, Barthold,  others

 

*Support Group Meetings*

 

Empire State Lyme en EspaŮol

 

Michele Moynihan's Presentation "Lyme Disease: Be Lyme Wise* is a Great Educational Presentation for School Children 

 

LYME BOOKS

and Books on 
Tick-Borne Diseases
plus

FREE: THE THIRD

GREAT PLAGUE

 

**Empire State Lyme Disease Association ~ Our Yahoo Discussion Group**

 

Children

Autism and Lyme Disease

Children

LYME & Pregnancy by John Drulle, MD

 

Misdiagnosis

Alzheimer's and Lyme Disease

 

LYME BORRELIOSIS and MULTIPLE SCLEROSIS

 

Worm Parasites, FILARIASIS Nematodes in ticks?

Nematode Spirochete Farmers

Nematode-Bacteria- Symbiosis

10 Questions For Scientists

 

Heart Disease & Lyme Disease & Lyme Carditis
 

Antibiotic

Resistance

 

ILADS TIPS TO AVOID CHRONIC LYME DISEASE

 

**US Senator Chuck Schumer, NY, on the
Board of Empire State 
Lyme Disease Association
**

 

*Donations*

*Contact Us*

*About Us

JOIN US ! (free)

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*Links

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Group

Meetings

*Home*  

 

Freedom of Information Law Requests

Federal Health Reform

Implementation Timeline

 

Special Thanks

 

In Memory

of Keith Romaine 

 

 
 

Click for Huntington, New York Forecast

          *2016 EVENTS*          

^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^

 Servicing Moriches to Montauk, Wading River to Orient Point & Shelter Island

http://tickcontrol.com

631-287-9700, 324- 9700 or 765-9700

 

PLEASE FORWARD INFORMATION  ~ FOR SUPPORT GROUP INFORMATION, SCROLL DOWN

PROTECT YOURSELF & PREVENT TICK & BUG BITES WHILE HELPING US TO RAISE AWARENESS!  

This is at no cost to you!   Order AVON Skin So Soft Bug Guard at http://lymeawarenessfundraiser.avonrepresentative.com/  Register your name, email, create password, log in & check direct mailing box.  Your order is sent directly to you! (US & Canada)

ANOTHER WAY YOU CAN HELP!  Please use AmazonSmile and a donation will be made to us, at no cost to you!  Just sign into AmazonSmile when you shop! Simply go to our AmazonSmile link at http://smile.amazon.com/ch/86-1174542 

Don't forget Mom, Dad, Birthdays, Graduations, Weddings, your electronic needs, vitamins, lavender soaps, etc!

 

      For more on repelling ticks Click here

                For "The Truth About Lyme" YouTube video

                go to https://www.youtube.com/watch?v=ypOa9ptJx3g

UPCOMING DATES: To help by distributing and posting flyers go to Printable Flyers

North Shore ~ Great Neck Chapter Lyme Support

         of  EMPIRE STATE LYME DISEASE ASSOCIATION INC  

Social Gathering for support and for sharing information.  Topics will be Allergies, Prevention, Alternatives
2016 Dates: Sunday June12 at 3 PM, Sunday July 17 at 3 PM, Sunday August 21 at 3 PM
Landmark Diner at 1027 Northern Blvd, Roslyn, NY 11576
Info  jessbmay@aol.com or empirestatelyme@aol.com

Ridge ~ Rocky Point Lyme Support
         of EMPIRE STATE LYME DISEASE ASSOCIATION INC

Social Gathering for support and for sharing information
2016 Dates: Saturday June 18 at 2 PM, Saturday July 16 at 2 PM, Saturday August 20 at 2 PM
Rocky Point Diner
25A (near 7-11), Rocky Point, NY!
 
Info Cathy at chahn720@verizon.net
or empirestatelyme@aol.com

Eastport ~ East Moriches Lyme Support

of EMPIRE STATE LYME DISEASE ASSOCIATION INC

Social Gathering for support and for sharing information
2016 Dates: Monday June 20 at 6:30 PM, Monday July 18 at 6:30 PM, Monday August 15 at 6:30 PM
Michelangelo's in King Kullen Shopping Center, 11 Eastport Manor Rd, Eastport, NY
Info empirestatelyme@aol.com 

Center Moriches ~ Manorville Lyme Support

         of  EMPIRE STATE LYME DISEASE ASSOCIATION INC

Social Gathering for support and for sharing information
2016 Dates: Saturday June 25 at 2 PM, Saturday July 23 at 2 PM, Saturday August 27 at 2 PM
Moriches Bay Diner at 62 Montauk Highway
Center Moriches, NY 
Info empirestatelyme@aol.com

Babylon ~ West Islip Lyme Support

of EMPIRE STATE LYME DISEASE ASSOCIATION INC

Social Gathering for support and for sharing information
2016 Dates: Saturday July 2 at 4 PM, Saturday August 6 at 4 PM, Saturday Sept 3 at 4 PM
Atlantis Diner 350 Montauk Highway West Islip, NY 11791
Info empirestatelyme@aol.com

FOR MORE SUPPORT GROUPS AND INFORMATION, SCROLL DOWN PAGE

 


*Important*Does Lyme affect the heart? Click Here for Lyme Carditis


*Support Meetings are free and open to the public, providing an opportunity for participants to exchange ideas and experiences, make connections and share resources. Meeting format is open forum unless otherwise stated. Families, friends, patients dealing with effects of Lyme disease are welcome.

WEST ISLIP LYME SUPPORT

of EMPIRE STATE LYME DISEASE ASSOCIATION INC

Info empirestatelyme@aol.com

NYC LYME DISEASE SUPPORT GROUP

Meetings are once per month on the 2nd Tuesday from 7-9 pm  alisonmurphy@earthlink.net

MOHAWK VALLEY LYME SUPPORT GROUP
Support in the Greater Utica Area!  Info www.mohawkvalleylymesupportgroup.com

THE CAPITAL REGION CHAPTER
       
of EMPIRE STATE LYME DISEASE ASSOCIATION INC
Meetings are and usually held at the Bethlehem Public Library, 451 Delaware Ave. Delmar, NY 12054.
Info bjmeslda@yahoo.com

CNY LYME SUPPORT (CNYLS)
         of EMPIRE STATE LYME DISEASE ASSOCIATION INC

CNYLS provides a place for its members to share feelings & concerns, offering a faith-based perspective

in coping with the complexities of living with Lyme. Monthly meetings held at Sullivan Free Library, Chittenango.

Info Phone 315-687-6540 or CNYlyme@gmail.com

THE FINGERLAKES REGION, ROCHESTER LYME DISEASE SUPPORT

         of EMPIRE STATE LYME DISEASE ASSOCIATION INC

Support meetings on the third Sunday of Every Month From 2:00 to 4:00 PM At the Farmington Town Hall

1000 County Road 8, Farmington NY 14425 Info Rochesterlyme@gmail.com

CORTLAND COUNTY LYME SUPPORT GROUP

          of EMPIRE STATE LYME DISEASE ASSOCIATION INC
Info 607-849-3127lauriejtebbe@yahoo.com

MOUNTAINTOP LYME SUPPORT GROUP

        of EMPIRE STATE LYME DISEASE ASSOCIATION INC
Meetings are the first Thursday of every month at Hunter Public Library at 7965 Main Street Hunter, NY

Info Regina at mountaintoplyme@gmail.com

EAST MORICHES LYME SUPPORT        

           of EMPIRE STATE LYME DISEASE ASSOCIATION INC

Info empirestatelyme@aol.com 

ROCKLAND COUNTY LYME DISEASE SUPPORT GROUP

Meets the first Wednesday of each month at 7 PM in the Community Room, Suffern Village Hall, 61 Washington Ave, Suffern NY 10901 Info nancywc418@aol.com Facebook- Lyme Disease Support Group, Rockland County

LYME CENTRAL NEW YORK CHAPTER

         of EMPIRE STATE LYME DISEASE ASSOCIATION INC

Central New York meets the third Monday of the month at 6:30 PM in the Community Room at Natur Tyme 3160 Erie Blvd E Syracuse, New York 13214 Info 315-200-6541 or LymeCNY@gmail.com

SOUTHERN TIER LYME SUPPORT GROUP
Monthly Meeting in Broome County, NY May 7th, Saturday. Lyme Disease Conference at Binghamton Univ. 8am-6pm
Register for free admission at: http://www.southerntierlymesupport.org/
Info ch.dh@hotmail.com

MANORVILLE LYME DISEASE SUPPORT

           of  EMPIRE STATE LYME DISEASE ASSOCIATION INC

Support Group Meetings to be announced Info empirestatelyme@aol.com

NORTH SHORE GREAT NECK CHAPTER

         of  EMPIRE STATE LYME DISEASE ASSOCIATION INC  

Social Gathering for support and for sharing information

Topics will be Allergies and Prevention
Sunday June12, 2016 at 3:00 PM
Landmark Diner at 1027 Northern Blvd, Roslyn, NY 11576

Info  jessbmay@aol.com or empirestatelyme@aol.com

NORTHERN DUTCHESS LYME SUPPORT

Meets monthly on the second Thursday, 7:30 pm at the First Baptist Church, 9 Astor Drive, Rhinebeck, NY.  Info Mary@acadiahr.com

RIDGE LYME SUPPORT GROUP
         of EMPIRE STATE LYME DISEASE ASSOCIATION INC

Support Group Meetings to be announced
Info Cathy at chahn720@verizon.net or empirestatelyme@aol.com

A HOPE 4 LYME

Support Meetings usually held at Big Flats Community Center (Room C) 476 Maple Street Big Flats, NY 14814
Info Linda Wales Phone 570-537-6616 or see www.ahope4lyme.org

Also go to Printable Flyers  (And you can help us out by posting in public places!)

 

NOTE: Long Island Tick Talk Lyme Support, East Islip Lyme and Adirondack Lyme Disease Foundation of EMPIRE STATE LYME DISEASE ASSOCIATION INC suspended meetings until further notice. Info empirestatelyme@aol.com

 

Information about Lyme & tick-borne diseases is provided for educational purposes only. We try to be available for as many patients as possible. Events are held in Oneonta, Onondaga, Chittenango, Southold, Hauppauge, Riverhead, Middle Island, Plainview, Huntington, Northport, Smithtown, Hampton Bays, Southampton, Glenn Falls, Saratoga, Delmar, Guilderland, Center Moriches, East Moriches, Montauk, Great Neck, the North Shore, Bayville, Baldwin, Rhinebeck, NYC, Upper West Side of Manhattan, Broome County, New Hartford, NY, Rockville Center, etc, across Long Island and New York State. For a meeting in your area, please contact us!  EmpireStateLyme@aol.com

HAVE YOU BEEN MISDIAGNOSED? click here or scroll down

 

  NEW YORK IS FOR WORLD WIDE LYME (BORRELIOSIS) AWARENESS

People across the world hold Lyme Awareness events! Info lisahilton4@gmail.com or www.whatislyme.com

HELP WITH MEDICINE COSTS http://www.themedicineprogram.com/

Read a letter to the NYS Health Dept and the OPMC here

 

HAVE YOU BEEN MISDIAGNOSED?

Lyme disease mimics other diseases which results in people being misdiagnosed with Fibromyalgia, Chronic Fatigue, ALS, MS, Lupus, Parkinsonís, Alzheimerís, or other diseases.  Then later, they may find that the 'culprit' is Lyme disease and it could be important not to overlook the AUTISM-LYME CONNECTION.  If you have Lyme disease, or have a loved one with Lyme disease, if you wish to learn more about one of the fastest growing vector-borne illnesses, support group meetings are for you. Learn about prevention. Lyme disease can be serious, and other serious diseases, like Babesiosis, Rock Mountain spotted fever, Ehrlichiosis, Bartonella, etc., are also transmitted by ticks.

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Ticks Can Be Active All Year Round - Caution Urged

The Empire State Lyme Disease Association urges everyone to be on guard throughout the year. Ticks may be active if the temperature is warm, even in the middle of the winter. The ticks can even become more active in the cooler and damper weather, and can be found in leaves, on trees, and in tall grasses or other leafy areas. We recommend using caution when moving firewood, walking in the woods or fields, and be especially vigilant in checking children who have been playing outdoors. The use of a commercial tick repellent, wearing light colored clothing, and avoiding leafy or tall grassy areas is recommended for out-door activities. Even if pets are vaccinated, they can bring ticks into the house. Check yourself, check your family members, and check your pets for ticks. 

SEE PREVENTION

Tick-borne diseases, rampant in New York, can be highly complex, and difficult to diagnose and treat. For instance, blood tests for Lyme can return false negative results, leading doctors and patients down long, expensive, and incorrect diagnostic paths.

SEE TESTING IS INACCURATE

We need more doctors to have extensive experience in the diagnosis and treatment of tick-borne diseases, in all stages and especially advanced stages. New York has a number of outstanding doctors who are helping many patients afflicted with Lyme and other tick-borne diseases. If diagnosed and treated early, patients can recover. If left undiagnosed, or improperly or insufficiently treated, Lyme and tick-borne diseases might turn into life-long debilitation. They can strike every one of the body's systems: digestive, circulatory, psychiatric, cardiac, pulmonary, neurological, etc. Tick-borne diseases are often misdiagnosed as ALS, MS, Chronic Fatigue, Fibromyalgia, psychiatric and many other disorders. Many people suffer with an "unknown disease" for years before they discover that they are victims of tick-borne disease. Because there is much conflicting information surrounding Lyme and tick-borne diseases, the Empire State Lyme Disease Association urges everyone to become familiar with prevention, symptoms, the kinds of medical help available, and ongoing support structures. More information can be found here within www.EmpireStateLymeDiseaseAssociation.org 

**LYME DISEASE INFO**

**Articles Proving Persistence**

**PREVENTION**

Ticks-download info**

**Nematodes, Worm Parasites, Nematodes**

**Testing is inaccurate**


CCSVI video by Stanford doctor covers the topic fairly broadly, talks about resolution of symptoms like brain fog, tinnitus etc in some of patients.

 http://csvi-ms.net/en/content/sir-presentation-prof-dake-available informative  


Click here to listen to a disturbing tape of how the American Academy of Neurology (AAN) once advertised about treatment for Tick-Borne Diseases


*Important* Does Lyme affect the heart? Click Here for Lyme Carditis


*More information* LYME DISEASE * Symptoms, Misdiagnosis, Testing, Coinfections*

 

The Empire State Lyme Disease Association, Inc. is a nonprofit charitable organization incorporated in NYS and dedicated to education, prevention,  awareness advocacy, research, and patient support for tick-borne illnesses including Lyme disease.  Our goal is to prevent chronic tick-borne diseases, by education about prevention which includes crucial early diagnosis.  We offer patient support and we work for awareness of the need for a quality of health care that needs to be provided to victims of both early and later diagnosed tick-borne diseases. We are dedicated to helping and supporting people suffering from Lyme and associated tick-borne diseases.  Empire State is based in Manorville, NY and is active in local, state, and national issues.  There is a desperate need for more awareness of the potential dangers of tick-borne illnesses.

 

Disclaimer: Information on this site is offered to help further awareness of Lyme and associated diseases.  We hope that the information will help you to become more familiar with the subject of tick borne illnesses, but the information on this web site should not be used as a substitute for medical advice, diagnosis, or treatment.  The information on this web site does not represent endorsement or an official position of Empire State Lyme Disease Association, Inc. or any of its directors, officers, advisors or members.  Please consult a physician for all medical advice, including advice on testing, treatment and care of a patient who has or may have Lyme or any associated tick borne diseases.

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Lyme Poets and Artists      To submit work, contact:   EmpireStateLyme@aol.com 

Last Modified: June 09, 2016

Lyme WebRing Here.
The Empire State Lyme Disease Association, Inc. is a nonprofit charitable organization incorporated in NYS and dedicated to education, prevention,  awareness and patient support for tick-borne illnesses including Lyme disease.  Our goal is education about prevention of tick bites and the importance of early diagnosis of the diseases transmitted by ticks.  We offer patient support and work for awareness of the need for health care for victims of both early and later diagnosed tick-borne diseases.Information on this site is offered to help further awareness of Lyme and associated diseases.  We hope that the information will help you to become more familiar with the subject of tick borne illnesses, but the information on this web site should not be used as a substitute for medical advice, diagnosis, or treatment. The information on this web site does not represent endorsement or an official position of Empire State Lyme Disease Association, Inc. or any of its directors, officers, advisors or members. Please consult a physician for all medical advice, including advice on testing, treatment and care of a patient who has or may have Lyme or any associated tick borne diseases