EMPIRE STATE LYME DISEASE ASSOCIATION

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OPMC Reform

Signed by Gov. Paterson 2008

and

NYS Doctors are Offered Some Protection

 

Empire State Lyme Informational Brochures (free)-also, you can ask for a customized version for your group

 

Tick- Info Plus (Download 97 page Tick Management free)

 

Lyme and Tick-

Borne Disease Info

· The Beginning

· Rashes

· Early Detection 

· Testing

· Symptoms

· Additional Symptoms

· Co-infections

· Late stage Infection

· Antibiotics

· Treatment

· Herxheimer Reaction

· Mechanism of Action

· Survival Tactics

· The Bad News 

· Conclusion

· Good News

· Prevention

· Alternative Treatments

· Lyme Disease Politics

· Disclaimer

 

**PREVENTION**

 

Lyme tests are not accurate-2005 John Hopkins study

 

Articles on the Persistence and Virulence of Lyme

by Miklossy, Luft, Barthold,  others

 

*Support Group Meetings*

 

Empire State Lyme en Español

 

Michele Moynihan's Presentation "Lyme Disease: Be Lyme Wise* is a Great Educational Presentation for School Children 

 

LYME BOOKS

and Books on 
Tick-Borne Diseases
plus

FREE: THE THIRD

GREAT PLAGUE

 

**Empire State Lyme Disease Association ~ Our Yahoo Discussion Group**

 

Children

Autism and Lyme Disease

Children

LYME & Pregnancy by John Drulle, MD

 

Misdiagnosis

Alzheimer's and Lyme Disease

 

LYME BORRELIOSIS and MULTIPLE SCLEROSIS

 

Worm Parasites, FILARIASIS Nematodes in ticks?

Nematode Spirochete Farmers

Nematode-Bacteria- Symbiosis

10 Questions For Scientists

 

Heart Disease & Lyme Disease & Lyme Carditis
 

Antibiotic

Resistance

 

ILADS TIPS TO AVOID CHRONIC LYME DISEASE

 

**US Senator Chuck Schumer, NY, on the
Board of Empire State 
Lyme Disease Association
**

 

*Donations*

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JOIN US ! (free)

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Group

Meetings

*Home*  

 

Freedom of Information Law Requests

Federal Health Reform

Implementation Timeline

 

Special Thanks

 

In Memory

of Keith Romaine 

 

 
 

 

 

 

 

 

 

 

 

 

 

MAY IS LYME AWARENESS MONTH   People across the US & world are holding events in May 2014 & later, it's important to participate!

* 2014 Event Reminders * PLEASE CLICK OR SCROLL DOWN FOR SUPPORT GROUP INFO  Click for Huntington, New York Forecast

NEW YORK SUPPORTS THE SECOND ANNUAL WWLAP & LYME LIVES HERE!

When: MAY 16, 2014 Time: 4 PM To 6 PM
Where: County Road 111 Manorville, Suffolk County, NY
When: MAY 17, 2014 Time: 2 PM To 4 PM
Where: Grace Ave Park, corner of Grace Ave & Park Place, Great Neck, Nassau County, NY
When: MAY 19, 2014 More details to follow

Email empirestatelyme@aol.com to attend, volunteer or announce NY events & lisahilton4@gmail.com for other states. 

It will be great to see how many patients and advocates are able to participate. After the WWP, there will be several reports that will include all world wide efforts. (at www.whatislyme.com & other sites)

EXAMPLES OF WHAT POSTERS CAN SAY 

2014

LYME

LIVES

HERE

MY TOWN, STATE, COUNTRY

 

MY TOWN

STATE, COUNTRY

SUPPORTS

THE

WORLDWIDE

LYME AWARENESS

PROTEST 2014

 

***NYS legislature: NYS Assembly A7558-A has passed! We are moving forward to protect patients' & doctors' rights.  Now NYS Senate S05520B, the corresponding bill to A7558-A, must pass the NYS Senate & then Gov Cuomo must sign it so that patients & doctors will be free to decide the best treatment plans for Lyme & other tick-borne diseases without fear of reprisal.

Please email, snail mail, call or visit your NYS Senator.  You may have passed a local office in your travels.  If you can, visit in person, for the best way to say how important this is for all New Yorkers. Ask friends & family to contact their NYS Senators.  Ask your NYS Senator to co-sponsor if they aren't already sponsors. Ask them to please get Senate bill S05520B passed. New York has one of the highest numbers of cases at 50,000 NEW cases estimated for 2012 alone.

Go here to read the bill: http://assembly.state.ny.us/leg/?default_fld=&bn=A07558&term=2013&Summary=Y&Actions=Y&Votes=Y&Memo=Y&Text=Y

To find your representatives, to urge the Senate to pass S05520B & to thank your Assembly members:

NYS Senator: http://www.nysenate.gov/?sh=lea & Simply type your address in upper left corner

NYS Assembly member: http://assembly.state.ny.us/mem/?sh=search Simply fill in your address

**Or go here for a complete list of NYS Assembly members and Senators**

Note: Already, one patient said she was printing all about the Assembly bill to show to her doctors.  And an insurance bill hopefully will be next.


SPRING IS HERE  for PREVENTION, see
http://empirestatelymediseaseassociation.org/Lyme_Disease/prevent_lyme_and_tick_borne_disease_empire_state_lyme.htm

*HERE IS A FUNDRAISER* YOU CAN PROTECT YOURSELF WHILE HELPING OTHERS!
*Proceeds will go to the LDUC, ESLDA & the World Wide Lyme Disease Awareness Effort
If you wish to order AVON Skin So Soft, Bug Guard, etc, go to: http://lymeawarenessfundraiser.avonrepresentative.com/
Please register with your name, email address, create a password & then log in. Remember to check direct mailing. (US & Canada)

Servicing from Moriches to Montauk, Wading River to Orient Point & Shelter Is.  

       http://tickcontrol.com

       631-287-9700, 324- 9700 or 765-9700

MAYDAY 2014
When: May 22 and 23, 2014
Time: 8:30 AM to whenever
Where: Advocates and patients will be making a presence at IDSA Headquarters at 1300 Wilson Blvd. Arlington, VA. They will be onsite for two days!
Everyone is welcome to join this effort
http://www.themaydayproject.org/


PLEASE CLICK HERE OR SCROLL DOWN FOR SUPPORT GROUP MEETING INFORMATION

*Support Meetings are free and open to the public*

Information about Lyme & tick-borne diseases is provided for educational purposes only. Meetings are usually open format. We help with locating resources & making connections, we encourage questions & an exchange of ideas, drawing from the experiences of support group members. Events have been held in Oneonta, Onondaga, Southold, Hauppauge, Riverhead, Middle Island, Plainview, Huntington, Northport, Smithtown, Hampton Bays, Southampton, Glenn Falls, Saratoga, Delmar, Guilderland, Center Moriches, East Moriches, Montauk, Great Neck, the North Shore, Bayville, Baldwin, Rockville Centre & etc, across NYS. If you're interested in meeting in any area, please contact us! Everyone is welcome! See below for current meeting info.


Read a letter to the NYS Health Dept & the OPMC here


Go Here for Lyme Disease United Coalition Phone Support Groups!  EMPIRE STATE LYME DISEASE ASSOCIATION INC is affiliated with THE LYME DISEASE UNITED COALITION, LDUC, with 150,000 members worldwide and growing!  Join: contact Judith Weeg Pres. Ph 515-432-3628 

Toll free 800-311-7518 Fax  888-746-3810  Email  LymeInfo@lduc.org   Web  www.lduc.org    Snail mail PO Box 86 Story City, IA 50248   LDUC Motto:

“Whoever destroys a soul, it is considered as if he destroyed an entire world. And, whoever saves a life, it is considered as if he saved an entire world.”


We're members of PARTNERS AGAINST LYME! Lyme orgs. & individuals worldwide: Join PAL & bring us together www.PALtad.org


HELP WITH MEDICINE COSTS http://www.themedicineprogram.com/

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HAVE YOU BEEN MISDIAGNOSED?

Lyme disease mimics other diseases which results in people being misdiagnosed with Fibromyalgia, Chronic Fatigue, ALS, MS, Lupus, Parkinson’s, Alzheimer’s, or other diseases.  Then later, they may find that the 'culprit' is Lyme disease and it could be important not to overlook the AUTISM-LYME CONNECTION If you have Lyme disease, or have a loved one with Lyme disease, if you wish to learn more about one of the fastest growing vector-borne illnesses, support group meetings are for you. Learn about prevention. Lyme disease can be serious, and other serious diseases, like Babesiosis, Rock Mountain spotted fever, Ehrlichiosis, Bartonella, etc., are also transmitted by ticks.

 

Long Island Tick Talk Lyme Disease Support

of EMPIRE STATE LYME DISEASE ASSOCIATION INC

Next meeting to be announced!

Open Forum support group meeting

at the Patchogue-Medford Library, Patchogue, NY

 

Manorville Lyme Disease Support

of  EMPIRE STATE LYME DISEASE ASSOCIATION INC
Next meeting to be announced!

For further information, contact empirestatelyme@aol.com

 

The Capital Region Chapter
of EMPIRE STATE LYME DISEASE ASSOCIATION INC

Next meeting to be announced!  Our meetings provide an opportunity for participants to raise questions, exchange ideas and experiences, make connections, and locate resources, drawing from the extensive experience of the other support group members. Anyone with questions about Lyme disease is welcome to attend. If you would like to be added to the mailing list to be notified of future events, or for further information, contact bjmeslda@yahoo.com

 

The Fingerlakes Region, Rochester 

Lyme Disease Support Group

of EMPIRE STATE LYME DISEASE ASSOCIATION INC

Support meetings on the third Sunday of Every Month From 2:00 to 4:00 PM 

At the Farmington Town Hall ~  1000 County Road 8, Farmington NY 14425

Email Fingerlakeslymegroup@yahoo.com  or corkyt@rochester.rr.com Ph 585-924-3558

 

Central New York Chapter

of EMPIRE STATE LYME DISEASE ASSOCIATION INC

Central New York is always the third Monday of the month at 6:30 PM

We are in the Community Room at Natur Tyme
3160 Erie Blvd E Syracuse, New York 13214

More information call 315-200-6541 or email LymeCNY@gmail.com

 

Cortland County Lyme Support Group

of EMPIRE STATE LYME DISEASE ASSOCIATION INC
MEETINGS WILL BE THE LAST WEDNESDAY OF EACH MONTH
WHERE: Marathon High School Room 110, Street, Marathon, NY

Ph 607-849-3127 ~ Laurie at
lauriejtebbe@yahoo.com

 

Chittenango Lyme Support
CNYLS provides a place for its members to share feelings & concerns,

offering a faith-based perspective in coping with the complexities of living with Lyme.

Contact CNYlyme@gmail.com or phone 315-687-6540
for the schedule for monthly meeting at Sullivan Free Library, Chittenango.

 

Mountaintop Lyme Support Group

of EMPIRE STATE LYME DISEASE ASSOCIATION INC
 We meet the first Thursday of every month.
WHERE: Hunter Public Library

at 7965 Main Street Hunter, NY

For more information, please contact ~ Regina at mountaintoplyme@gmail.com

 

Rockland County Lyme Disease Support Group

Meets the first Wednesday of each month at 7 PM

Where: Community Room, Suffern Village Hall, 61 Washington Ave, Suffern NY 10901

Who: Those dealing with effects of Lyme disease, family-friends welcome

Contact: Email – nancywc418@aol.com  Facebook- Lyme Disease Support Group, Rockland County

 

The Northern Dutchess Lyme Disease Support Group

Meets monthly on the second Thursday, 7:30pm

Location: The First Baptist Church, 9 Astor Drive, Rhinebeck, NY.

Facilitator Mary Belliveau, RN Mary@acadiahr.com 

RIDGE LYME SUPPORT GROUP
of EMPIRE STATE LYME DISEASE ASSOCIATION INC

Next meeting to be announced!

WHERE: Ridge Civic Center, Panamoka Trail, Lake Panamoka, Ridge, NY Going west on Rt. 25, you make a right onto Panamoka Trail;

go 3 blocks and the Civic Center is on the right -  you will see the firehouse across the street.  Heading east on Rt. 25, go past the William Floyd Parkway intersection and continue east until you see "Panamoka Trail road sign on the left. Go left, head three blocks and the Civic Center is on the right.

Participants are encouraged All with questions about Lyme & tick-borne disease are welcome to attend!
Info 631- 929-6142 or Cathy at chahn720@verizon.net

 

Adirondack Lyme Disease Foundation

with EMPIRE STATE LYME DISEASE ASSOCIATION INC
TO BE ANNOUNCED

For more information, please email lmcallister@nycap.rr.com 

 

A Hope 4 Lyme

Support Meetings usually held at
Big Flats Community Center (Room C) 476 Maple Street Big Flats, NY 14814
This is free and open to anyone suffering from Lyme or other tick-borne diseases, caregivers,

children, friends & family who have questions and-or are looking for answers.

CONTACT Linda Wales Director-Treasurer
PO Box 1003 Elmira, NY 14902-1003
www.ahope4lyme.org

 

East Islip Lyme Disease Support

of EMPIRE STATE LYME DISEASE ASSOCIATION INC
Next meeting to be announced!

Open Forum support group meeting 

at the East Islip Public Library, East Islip, NY

For further information, contact empirestatelyme@aol.com

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Also see: Support Group Meetings and Download printable flyers (And you can help us out by posting in public places!)

In an attempt to be available for as many patients as possible, past events have been held across Long Island and across New York State. Future events will be announced. Please contact us if you are interested in meeting in a specific area.  Meetings will be held contingent on the need stated to us by the residents of each community. Info 631-878-6657 or EmpireStateLyme@aol.com or NorthShoreLyme@gmail.com


***Report on the Saratoga Lyme Forum, May 21, 2012***

(A Forum on Tick-Borne Diseases - What's NEXT?)


Ticks Can Be Active All Year Round - Caution Urged

The Empire State Lyme Disease Association urges everyone to be on guard throughout the year. Ticks may be active if the temperature is warm, even in the middle of the winter. The ticks can even become more active in the cooler and damper weather, and can be found in leaves, on trees, and in tall grasses or other leafy areas. ESLDA recommends using caution when moving firewood, walking in the woods or fields, and be especially vigilant in checking children who have been playing outdoors. The use of a commercial tick repellent, wearing light colored clothing, and avoiding leafy or tall grassy areas is recommended for out-door activities. Even if pets are vaccinated, they can bring ticks into the house. Check yourself, check your family members, and check your pets for ticks. 

SEE PREVENTION

Tick-borne diseases, rampant in New York, can be highly complex, and difficult to diagnose and treat. For instance, blood tests for Lyme can return false negative results, leading doctors and patients down long, expensive, and incorrect diagnostic paths. 

SEE TESTING IS INACCURATE

We need more doctors to have extensive experience in the diagnosis and treatment of tick-borne diseases, in all stages and especially advanced stages. New York has a number of outstanding doctors who are helping many patients afflicted with Lyme and other tick-borne diseases. If diagnosed and treated early, patients can recover. If left undiagnosed, or improperly or insufficiently treated, Lyme and tick-borne diseases might turn into life-long debilitation. They can strike every one of the body's systems: digestive, circulatory, psychiatric, cardiac, pulmonary, neurological, etc. Tick-borne diseases are often misdiagnosed as ALS, MS, Chronic Fatigue, Fibromyalgia, psychiatric and many other disorders. Many people suffer with an "unknown disease" for years before they discover that they are victims of tick-borne disease. ;Because there is much conflicting information surrounding Lyme and tick-borne diseases, the Empire State Lyme Disease Association urges everyone to become familiar with prevention, symptoms, the kinds of medical help available, and ongoing support structures. More information can be found here within www.EmpireStateLymeDiseaseAssociation.org 

Specifically go to: 

**LYME DISEASE INFO**

Articles Proving Persistence

**PREVENTION**

**Ticks-download info**

Nematodes, Worm Parasites, Nematodes

**Testing is inaccurate**


Link below to purchase award winning film documentary Under Our Skin:

www.amazon.com/gp/product/B004I0H71I?ie=UTF8&tag=santaclarit07-20&linkCode=as2&camp=1789&creative=390957&creativeASIN=B004I0H71I 


More info, Also Yahoo Discussion Group


CCSVI video by Stanford doctor covers the topic fairly broadly, talks about resolution of symptoms

like brain fog, tinnitus etc in some of patients.

 http://csvi-ms.net/en/content/sir-presentation-prof-dake-available informative  


Click here to listen to a disturbing tape of how the American Academy of Neurology (AAN)

once advertised about treatment for Tick-Borne Diseases


*Important* Does Lyme affect the heart? Click Here for Lyme Carditis


*More information* LYME DISEASE * Symptoms, Misdiagnosis, Testing, Coinfections*

 

The Empire State Lyme Disease Association, Inc. is a nonprofit charitable organization incorporated in NYS and dedicated to education, prevention,  awareness advocacy, research, and patient support for tick-borne illnesses including Lyme disease.  Our goal is to prevent chronic tick-borne diseases, by education about prevention which includes crucial early diagnosis.  We offer patient support and we work for awareness of the need for a quality of health care that needs to be provided to victims of both early and later diagnosed tick-borne diseases. We are dedicated to helping and supporting people suffering from Lyme and associated tick-borne diseases.  Empire State is based in Manorville, NY and is active in local, state, and national issues.  There is a desperate need for more awareness of the potential dangers of tick-borne illnesses.

 

Disclaimer: Information on this site is offered to help further awareness of Lyme and associated diseases.  We hope that the information will help you to become more familiar with the subject of tick borne illnesses, but the information on this web site should not be used as a substitute for medical advice, diagnosis, or treatment.  The information on this web site does not represent endorsement or an official position of Empire State Lyme Disease Association, Inc. or any of its directors, officers, advisors or members.  Please consult a physician for all medical advice, including advice on testing, treatment and care of a patient who has or may have Lyme or any associated tick borne diseases.

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In Memory of Keith Romaine

Lyme Poets and Artists

To submit work, contact: EmpireStateLyme@aol.com 

PAINT MAY LYME GREEN http://lymebites.com/ & also www.spirochicks.com

Download printable flyers!

More info, please see: Support Group Meetings

Inspiration:

Paddle Your Own Canoe

Last Modified: May 14, 2014


 

 

 

 

 

 

 

 

 

      

                                                    

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

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Lyme WebRing Here.

The Empire State Lyme Disease Association, Inc. is a nonprofit charitable organization incorporated in NYS and dedicated to education, prevention,  awareness and patient support for tick-borne illnesses including Lyme disease.  Our goal is education about prevention of tick bites and the importance of early diagnosis of the diseases transmitted by ticks.  We offer patient support and work for awareness of the need for health care for victims of both early and later diagnosed tick-borne diseases.Information on this site is offered to help further awareness of Lyme and associated diseases.  We hope that the information will help you to become more familiar with the subject of tick borne illnesses, but the information on this web site should not be used as a substitute for medical advice, diagnosis, or treatment. The information on this web site does not represent endorsement or an official position of Empire State Lyme Disease Association, Inc. or any of its directors, officers, advisors or members. Please consult a physician for all medical advice, including advice on testing, treatment and care of a patient who has or may have Lyme or any associated tick borne diseases Back to Top

 

Lyme WebRing Here.

The Empire State Lyme Disease Association, Inc. is a nonprofit charitable organization incorporated in NYS and dedicated to education, prevention,  awareness and patient support for tick-borne illnesses including Lyme disease.  Our goal is education about prevention of tick bites and the importance of early diagnosis of the diseases transmitted by ticks.  We offer patient support and work for awareness of the need for health care for victims of both early and later diagnosed tick-borne diseases.Information on this site is offered to help further awareness of Lyme and associated diseases.  We hope that the information will help you to become more familiar with the subject of tick borne illnesses, but the information on this web site should not be used as a substitute for medical advice, diagnosis, or treatment. The information on this web site does not represent endorsement or an official position of Empire State Lyme Disease Association, Inc. or any of its directors, officers, advisors or members. Please consult a physician for all medical advice, including advice on testing, treatment and care of a patient who has or may have Lyme or any associated tick borne diseases Back to Top