Servicing from Moriches to Montauk - Wading River to Orient Point & Shelter Is.

http://tickcontrol.com 631-287-9700 324- 9700 or 765-9700

HELP WITH MEDICINE COSTS http://www.themedicineprogram.com/

PLEASE CLICK HERE OR SCROLL DOWN FOR SUPPORT GROUP MEETING INFORMATION

Friday April 19th, 2013 Children and Lyme Disease

*Support Meetings are free and open to the public*

We provide information on topics of Lyme and tick-borne diseases for educational purposes only and we address other areas of concern to participants.  Unless otherwise specified, we hold meetings in an open format where this format encourages participants to raise questions, exchange ideas and experiences, make connections, and locate resources, drawing from the extensive experience of the other support group members. Anyone with questions about Lyme and tick borne disease is welcome to attend.

WORLD WIDE LYME DISEASE

AWARENESS PROTEST

(USA contact: Lisa Hilton at wheresthekarma@yahoo.com)

World wide gathering in 27 countries and 20 US states! 

 

Doctors/medical professional speakers:
Dr Daniel J. Cameron, NY (past president & co-founder ILADS, president 2013), Lyme & epidemiological research

Dr Kenneth B. Liegner, NY, internal medicine, critical care, treating Lyme since 1988

Dr Andrea Gaito, NJ (former president ILADS, current Treasurer, ILADS) rheumatologist/internist

Dr Charles Ray Jones, CT (ILADS, pediatrician who has treated 20,000 children in Europe, Australia, US, Canada, Mexico, S Africa, Pakistan, India, Singapore, China, Japan, N. Korea, S. Korea, Saudi Arabia etc. 

Dr Eva Sapi, CT, Univ. of New Haven, Dept of Biology & Environmental Science 

Tracy Hans, NJ, LPC, ACS, Lyme literate Psychotherapist 

Gerald Simon, NY, PA-C, The Morrison Center, NYC.

Additional speakers:

Douglas Nadjari, Esq., NY, successfully counseled Dr. Liegner thru OPMC process

Jill Auerbach, NY, Hudson Valley Lyme Disease Association, tick prevention

Jeff Christiansen, Fire Island four poster deer program

Evan White, Advocate, attorney, recovered Lyme patient 

Anonymous children, Lyme patients

Pam Weintraub, author, Cure Unknown, book signing

 

Where, When & Why? And What can you do?

Where: So far 27 countries are involved. Click Here for a list of participating countries.
Twenty states too. Is yours one of them? If not, would you be interested in  planning an event in your area? Please click here to see list of participating states.

When: Protests will be held on May 10 & 11th. Each state, province or country can pick which day best suits them or do both if they would like.

Why:
 * Lyme patients from all over the world feel they are being ignored and even being denied treatment for tick borne illnesses such as Lyme Disease, Babesia, Erlichisois, Ricksettia and Bartonella.
* Demands are being made for accurate testing, proper treatments, and admittance that Chronic Lyme Disease is real, serious and potentially fatal.
* Patients want to know why the IDSA is being used by the CDC for their guidelines in the treatment of Lyme Disease even after Attorney General Blumenthal's investigation found them biased and the guidelines flawed.
* Lyme patients are asking that the healthcare community need be better educated in order to effectively diagnose and treat patients with Chronic Lyme Disease.
* Lyme patients are stating that independent funding for medical research into Lyme Disease testing and treatment are needed.

What can You do to help?
There are several things you can do now to start helping make this protest a success.  We realize we are a group of people who are very ill trying to invoke change. So we set up several different way you can help even from home. Simple Ways to Help Now

If you cannot attend, consider making a donation instead.  If you can contribute in addition to attending, that's great!

For the USA

Lisa Hilton 
1088 Wells St #15
Lake Geneva, Wi 53147

or to paypal: wheresthekarma@yahoo.com 
or go to the fundraising page at 
http://www.indiegogo.com/projects/worldwide-lyme-disease-awareness-protest-fundraiser/x/1726904

To learn more details about this protest please visit these following pages.
Worldwide Facebook Page - Here events are being planned and discussed and updates will be posted about all the countries involved. (If link does not work you can search for Worldwide Lyme Protest on Facebook)

Worldwide Lyme Disease Awareness Protest Official Website - This website has all the International  information and links to what countries and states are participating. All details will be kept up to date. It is a good directional for the info you may be looking for.
Worldwide Lyme Disease Awareness Protest US-  This site will be posting up to date information on the United States protests and plans.

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THE ONEONTA LYME SUPPORT

These meetings are to be held at Robinson Terrace
28652 New York Rte. 23
Stamford, New  York
In front entrance, first floor conference room.
April 18  2013 Thursday from; 4:00 PM til 6:00 PM
and 
April 20 2013 Saturday from; 10 AM til 12:00 noon
For all those interested in sharing experiences with Lyme and associated diseases.
For further information, contact: Bob Tuthill, 607-278-4049 or btut42@ yahoo.com

There is no charge and the public is cordially invited to attend.

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Also see: Support Group Meetings and Download printable flyers

Riverhead, Manorville, Huntington, North Shore, Great Neck events to be announced

Info 631-878-6657 or EmpireStateLyme@aol.com or NorthShoreLyme@gmail.com

 

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RIDGE LYME SUPPORT GROUP
EMPIRE STATE LYME DISEASE ASSOCIATION INC
DATES TO BE ANNOUNCED

WHERE: Ridge Civic Center, Panamoka Trail, Lake Panamoka, Ridge, NY Going west on Rt. 25, you make a right onto Panamoka Trail; go 3 blocks and the Civic Center is on the right -  you will see the firehouse across the street.  Heading east on Rt. 25, go past the William Floyd Parkway intersection and continue east until you see "Panamoka Trail road sign on the left. Go left, head three blocks and the Civic Center is on the right.

Open Forum plus ongoing discussion:  HAVE YOU BEEN MISDIAGNOSED?

Lyme disease mimics other diseases; people are misdiagnosed with Fibromyalgia, Chronic Fatigue, ALS, MS, Lupus, Parkinson’s, Alzheimer’s, and later, will find that the 'culprit' is Lyme disease. We will also discuss the AUTISM-LYME CONNECTION Participants are encouraged.  All with questions about Lyme & tick-borne disease are welcome to attend!
Info 631- 929-6142 or Cathy at chahn720@verizon.net

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The Fingerlakes Region, Rochester Lyme Disease Support Group

Empire State Lyme Disease Association, Inc.

Support Meetings on the Third Sunday of Every Month From 2:00 to 4:00 PM 

At the Farmington Town Hall ~  1000 County Road 8, Farmington NY 14425

Email Fingerlakeslymegroup@yahoo.com or corkyt@rochester.rr.com Ph 585-924-3558 

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Central New York Chapter

EMPIRE STATE LYME DISEASE ASSOCIATION INC

Meeting to be announced

New Location 

at the New Nature-Tyme Store on Erie Boulevard
Please attend if you are interested in sharing and learning about Lyme and associated tick-borne diseases.  We More information call 315-200-6541 or email LymeCNY@gmail.com 

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Schedule for CNYLS, the Lyme group from Chittenango CNYLS

Monthly meetings are held at Sullivan Free Library, Chittenango.  

CNYLS, founded 2011, serves as a resource, offering information and guidance for issues of Lyme and other tick-borne diseases. CNYLS provides a place for its members to share feelings and concerns with others suffering from effects of the disease. CNYLS also offers a faith-based perspective in coping with the complexities of living with Lyme. Contact CNYLS at CNYlyme@gmail.com, or phone 315-687-6540.

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MIDDLE ISLAND LYME SUPPORT
brought to you by

www.liHeartandHealth.com and EMPIRE STATE LYME DISEASE ASSOCIATION INC
281 Middle Country Rd,
Middle Island, NY11953-2505 
If you would like to be added to the mailing list to be notified of future events, or for further information, 631-878-6657 or EmpireStateLyme@aol.com

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VISION FOR LYME ENCOURAGEMENT GROUP  

 Support Group Meeting 2nd Wed of every month

6:30 at Bethlehem Community Church 201 Elm Avenue, Delmar 

We'll try to start promptly at 6:30 & end promptly at 7:45 

This is a non-denominational faith-based group to listen and support each other’s spirituality as we all strive to heal. This group will begin and end in prayer. 

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Adirondack Lyme Disease Foundation
FUTURE DATES TO BE ANNOUNCED

Support group meetings are scheduled to be held

at the Saratoga Springs Public Library, 49 Henry Street,
Saratoga Springs, NY in the Susman room, located on the lower level, from 7-8:30 PM

For more information, please email lmcallister@nycap.rr.com 

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A Hope 4 Lyme LYMEWALK MAY 11, 2013

Support Meetings usually held at
Big Flats Community Center (Room C) 476 Maple Street Big Flats, NY 14814
This is free and open to anyone suffering from Lyme or other tick-borne diseases, caregivers, children, friends & family who have questions and-or are looking for answers.

CONTACT Linda Wales Director-Treasurer
PO Box 1003 Elmira, NY 14902-1003
www.ahope4lyme.org

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Click here for printable flyers

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"Children and Lyme Disease: 
What Everyone Should Know!"

Presented by Lyme Alliance of the Berkshires 
Hosted by Berkshire South Regional Community Center
An educational panel about Lyme Disease and its effect on children.
The goal of this event is to provide parents/families and anyone that works with children with the tools to help them approach America’s fastest growing infectious disease from an educated and prepared perspective.
A Q & A will follow after the panel has made their presentations.
Special Guest Speakers include:
Dr. Thomas Moorcroft, DO: Board Certified in Family 
Medicine and Osteopathic Manipulative Treatment.
Dr. Sheila Statlender, PhD: Clinical Psychologist w/ 
expertise regarding the impact of chronic illness, Parent, 
MA Lyme Commission Member and Lyme Advocate.
Sharon Hawkes: Parent, Librarian and Lyme Disease Digital Library Trustee.
Karla Lehtonen: Parent and Lyme Advocate.
Friday April 19th, 2013
5:30 PM 
Berkshire South Regional Community Center
Auditorium
15 Crissey Road
Great Barrington, MA 
for more info email:
thelymelife@yahoo.com

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***Report on the Saratoga Lyme Forum, May 21, 2012***

(A Forum on Tick-Borne Diseases - What's NEXT?)

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Ticks Can Be Active All Year Round - Caution Urged

The Empire State Lyme Disease Association urges everyone to be on guard throughout the year. Ticks may be active if the temperature is warm, even in the middle of the winter. The ticks can even become more active in the cooler and damper weather, and can be found in leaves, on trees, and in tall grasses or other leafy areas. ESLDA recommends using caution when moving firewood, walking in the woods or fields, and be especially vigilant in checking children who have been playing outdoors. The use of a commercial tick repellent, wearing light colored clothing, and avoiding leafy or tall grassy areas is recommended for out-door activities. Even if pets are vaccinated, they can bring ticks into the house. Check yourself, check your family members, and check your pets for ticks. 

SEE PREVENTION

Tick-borne diseases, rampant in New York, can be highly complex, and difficult to diagnose and treat. For instance, blood tests for Lyme can return false negative results, leading doctors and patients down long, expensive, and incorrect diagnostic paths. 

SEE TESTING IS INACCURATE

We need more doctors to have extensive experience in the diagnosis and treatment of tick-borne diseases, in all stages and especially advanced stages. New York has a number of outstanding doctors who are helping many patients afflicted with Lyme and other tick-borne diseases. If diagnosed and treated early, patients can recover. If left undiagnosed, or improperly or insufficiently treated, Lyme and tick-borne diseases might turn into life-long debilitation. They can strike every one of the body's systems: digestive, circulatory, psychiatric, cardiac, pulmonary, neurological, etc. Tick-borne diseases are often misdiagnosed as ALS, MS, Chronic Fatigue, Fibromyalgia, psychiatric and many other disorders. Many people suffer with an "unknown disease" for years before they discover that they are victims of tick-borne disease. ;Because there is much conflicting information surrounding Lyme and tick-borne diseases, the Empire State Lyme Disease Association urges everyone to become familiar with prevention, symptoms, the kinds of medical help available, and ongoing support structures. More information can be found here within www.EmpireStateLymeDiseaseAssociation.org 

Specifically go to: 

**LYME DISEASE INFO**

Articles Proving Persistence

**PREVENTION**

**Ticks-download info** Nematodes, Worm Parasites, Nematodes

**Testing is inaccurate**

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Link below to purchase award winning film documentary Under Our Skin: www.amazon.com/gp/product/B004I0H71I?ie=UTF8&tag=santaclarit07-20&linkCode=as2&camp=1789&creative=390957&creativeASIN=B004I0H71I 

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More info, Also Yahoo Discussion Group

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** CCSVI video by Stanford doctor covers the topic fairly broadly, talks about resolution of symptoms like brain fog, tinnitus etc in some of patients. http://csvi-ms.net/en/content/sir-presentation-prof-dake-available informative  

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Click to listen to a disturbing tape of how the American Academy of Neurology (AAN) once advertised about treatment for Tick-Borne Diseases

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*Important* Does Lyme affect the heart? Click Here for Lyme Carditis

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*More information* LYME DISEASE * Symptoms, Misdiagnosis, Testing, Coinfections*

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PAINT MAY LYME GREEN http://lymebites.com/ & also www.spirochicks.com The Empire State Lyme Disease Association, Inc. is a nonprofit charitable organization incorporated in NYS and dedicated to education, prevention,  awareness advocacy, research, and patient support for tick-borne illnesses including Lyme disease.  Our goal is to prevent chronic tick-borne diseases, by education about prevention which includes crucial early diagnosis.  We offer patient support and we work for awareness of the need for a quality of health care that needs to be provided to victims of both early and later diagnosed tick-borne diseases. We are dedicated to helping and supporting people suffering from Lyme and associated tick-borne diseases.  Empire State is based in Manorville, NY and is active in local, state, and national issues.  There is a desperate need for more awareness of the potential dangers of tick-borne illnesses. Disclaimer: Information on this site is offered to help further awareness of Lyme and associated diseases.  We hope that the information will help you to become more familiar with the subject of tick borne illnesses, but the information on this web site should not be used as a substitute for medical advice, diagnosis, or treatment.  The information on this web site does not represent endorsement or an official position of Empire State Lyme Disease Association, Inc. or any of its directors, officers, advisors or members.  Please consult a physician for all medical advice, including advice on testing, treatment and care of a patient who has or may have Lyme or any associated tick borne diseases. Back to Top In Memory of Keith Romaine Lyme Poets and Artists To submit work, contact: EmpireStateLyme@aol.com

Download printable flyers!

More info, please see: Support Group Meetings

Inspiration: Paddle Your Own Canoe